September 2026 Genetic testing in pregnancy is changing quickly. This month, a new set of international recommendations from the International Society of Prenatal Diagnosis (ISPD) and the European Society of …
New Recommendations for Prenatal Genomic Sequencing: What Families Should Know Read More »
By Stephanie Meredith, MA, DrPH and Viviane Polarson, MS, CGC A recent viral video posted by a popular YouTuber with more than five million followers has brought renewed attention to …
We are pleased to announce that the Genetic Support Foundation (GSF) has been approved for a funding award through the Eugene Washington PCORI Engagement Award Program, an initiative of the …
Contributing authors: Andrea Schelhaas, Cruzanne Macalligan, and Colleen Gioffreda When you learn your child has dwarfism, it’s natural to have many questions. That curiosity is a great thing – it’s …
We’re excited to share the remarkable progress made during year two of our multi-year HRSA Healthy Tomorrows Partnership for Children Program (HTPCP) grant, which funds our continued efforts to expand …
By Devin Shuman, CGC (she/her) and Andrea Schelhaas, CGC (she/her) *Of note, we purposefully use capital D in Disabled and capital A in Autistic in this text as individuals who …
Who Defines “Health” and What Purpose Does Its Definition Serve? Read More »
Part 2: Weaving Together Unlikely Allies in Defense of Good Parenting Follow this upcoming series of blog posts to track the rise of the pronatalism movement in Silicon Valley, the …
The Rebirth of Eugenics: Tech Bros and Pronatalism Read More »
The Rebirth of Eugenics: Tech Bros and PronatalismFollow this upcoming series of blog posts to track the rise of the pronatalism movement in Silicon Valley, the threads of eugenics woven …
Part 1: The Threads of 20th Century Eugenics Interwoven with Modern Pronatalism Read More »
By Andrea Schelhaas, Stephanie Meredith and Katie Stoll In November 2021 under the Accelerated Approval Program, the U.S. Food and Drug Administration announced approval of Voxzogo (vosoritide), a drug developed …
Pharma’s Role in Practice Guideline Development: Achondroplasia as a Case Study Read More »
By Devin Shuman, CGC (she/her) We need to talk about genetic exceptionalism. By this I mean, the notion that genetic testing is so groundbreaking that it has replaced the entire …
Genetic Exceptionalism: Medicine’s Overreliance on Genetic Testing Read More »
