Share Your Story

Share Your Story

Genetic healthcare doesn’t start with a test. It starts with you.

Most likely an unexpected life event led you to genetic counseling. A cancer screening. A prenatal testing result. An unexpected diagnosis.

In this moment, a certified genetic counselor helped you to make sense of it all. Pointing you to the right resources, walking you through your results and answering your questions, helping you make informed decisions. But for many, this process can be confusing and overwhelming. They may be scared. They may feel alone.

You can help. Your experience matters. Your story matters. That’s why we created the It Starts with You storytelling project. We invite you to share your story so that others can better understand what to expect. And so they know they’re not alone.

Please take a moment to think about the following questions, then complete the form below.

  • What was it like the first time someone mentioned ‘Genetic Counseling’ to you? Did you know what it meant?
  • What was it like the first time you met with a Genetic Counselor? In addition to the medical information you received, how did you feel about the encounter?
  • How has your life been shaped by your genetic counseling and any subsequent testing or healthcare management or changes that have ensued?
  • What advice would you give to someone who is considering genetic counseling or genetic testing?

Your experience matters. Tell us your story.

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