Share Your Story

Most likely, an unexpected life event put you in the position where you needed to see a certified genetic counselor—to help you make informed decisions, to point you to resources, and to help you navigate the emotional toll of it all.

Your experience matters. We invite you to share your story so that others have a better understanding of what to expect. And so they know they’re not alone. Please take a moment to think about the following questions, then fill out the form below. Thank you. 

What was it like the first time someone mentioned ‘Genetic Counseling’ to you? Did you know what it meant?

What was it like the first time you met with a Genetic Counselor? In addition to the medical information you received, how did you feel about the encounter?

How has your life been shaped by your genetic counseling and any subsequent testing or healthcare management or changes that have ensued?

What advice would you give to someone who is considering genetic counseling or genetic testing?