Spina Bifida

Spina Bifida

If you have just found out through prenatal testing that your baby has spina bifida or might have spina bifida and are looking for more information, the Genetic Support Foundation is a good starting point.

There are other important resources out there, including your doctor and genetic counselor. We have also compiled a list of resources that can provide you with additional information and support.

After reviewing the information below, if you have a question that you are having difficulty finding an answer for, please feel free to contact us.

Overview of important information About Spina Bifida

The National Institute of Neurological Disorders and Stroke has put together an excellent overview of spina bifida including:

  • What is spina bifida?
  • What are the different types of spina bifida?
  • What causes spina bifida?
  • What are the signs and symptoms of spina bifida?
  • What are the complications of spina bifida?
  • How is it diagnosed?
  • How is spina bifida treated?
  • Can it be prevented?
  • What is the prognosis?
  • What research is being done?

To access this helpful resource click HERE.



Video-Indivuals with Spina Bifida and Their Parents Talk About Spina Bifida

Individuals living with spina bifida and their parents talk about their lives and spina bifida. Video produced by the Center for Disease Control and Prevention (CDC)



Video- One mom talks about her daughter with spina bifida

An interview with one mom about her daughter’s spina bifida. Click on the link below to watch.

http://www.parents.com/videos/v/69160437/life-with-spina-bifida.htm




Resources

Spina Bifida Association

National Institute of Neurological Disorders and Stroke Spina Bifida Fact Sheet

 


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