Resources for People With Hereditary Breast Cancer

Breast Cancer Web sites

BreastCancer.org

  • Explains about the multiple genes that have been found to increase the risk for hereditary breast cancer

National Cancer Institute: Information on Ataxia Telangiectasia

  • Reviews how ataxia telangiectasia is inherited, and discusses possible increased risks for cancer

Susan G Komen: Breast Cancer and Genetics Fact Sheet

  • Information about the link between breast cancer and genetics

Susan G Komen: Testing for BRCA1 and BRCA2

  • Information about genetic testing for BRCA1 and BRCA2

B-RST Breast Cancer Screening Tool

  • A screening tool for doctors or patients that asks family history questions to determine if someone is at a high risk for hereditary cancer

PROMPTClinGen, GenomeConnect

  • Sites where patients can share their test results to help researchers understand more about hereditary cancer risks

FORCE

  • Has more information about BRCA1 and BRCA2, as well as research studies and new clinical trials

Kintalk

  • Contains education and tools to help people in sharing their genetic information with family members

Patientslikeme

  • This site provides a platform for patients to voice their experiences in dealing with their illness.

MD Anderson Cancer Center: Moon Shots

  • Gives updates on advances in treatment for various types of cancer

Current Events

Press Release: FDA approves Lynparza to treat advanced ovarian cancer

 

Science: Variation in cancer risk among tissues can be explained by the number of stem cell divisions

 

New York Times: Cancer’s Random Assault

The Washington Post: BRCA, Guilt and Motherhood

 

 

Graphics

NPR: What Happens After You Get That Mammogram

 

Medscape: Percent of Breast Cancer Avoidable if Prevention Begins at Age 2 Years

 

Science: Calculus of risk chart

 

 

Videos

Caitlin’s Preventative Mastectomy

Kintalk: Hereditary Breast Cancer and Sharing Your Information

MD Anderson Cancer Center video series:


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