Hemoglobinopathies (e.g. sickle cell anemia, thalassemia)
If you have just found out through genetic testing that you and/or your partner are a carrier of a hemoglobinopathy or that your baby may be at risk of having a hemoglobinopathy and you are looking for more information, the Genetic Support Foundation is a good starting point.
There are other important resources out there, including your doctor and genetic counselor. We have also compiled a list of resources below that can provide you with additional information and support.
After reviewing the information below, if you have a question that you are having difficulty finding an answer for, please feel free to contact us